About my 'big sister,' the times and seasons of life, and love eternal

 Her name is Carolyn.

She has always been my "big sister," being born three years before me.

But because of her oxygen deprivation in the womb, and the cerebral palsy she was born with, it was my role from a young age to be her "big brother."

She needed surgery to correct her crossed-eyes as an infant, and physical and often painful strap on leather and metal braces to hobble a few steps. I was five years old when Mom took me outside on a warm Norwalk, Calif., day and explained why my sis still could speak only short sentences, and then only with intensively exhausting stutters.

"Carolyn is what the doctors call 'mentally retarded,'" Mom said softly. "She won't be able to learn like you. And since she is crippled, people stare at how she walks, and some kids will even tease and try to hurt her."

There were tears forming in Mom's eyes. "You will be her 'big brother,' more and more as you grow," she said, trying to smile encouragingly.

And so, I tried to be just that. Protecting my sister from neighborhood bullies got me in my first fights as a young boy, and the violence escalated from a punch in the stomach for a kid who pushed her to the ground, to blood and chipped teeth for both me and one, sometimes more bullies as I grew into adolescence.

But I could not protect Carolyn from the emotional swings and physical tantrums that came as she grew, too, though physically handicapped but strong as an adult. Still, she had the cognitive limits of a 4-to–5-year-old.

Mom, barely 5-foot-2, would try to keep the larger Carolyn from biting chunks out of her own arms in self-destructive rages; and often, Mom, too, would end up with bruises and lumps from my sister's kicks and bleeding, whaling fists.

When the rage subsided, a confused Carolyn would see, but not understand injuries to herself and Mom. Sis would cry, "S-s-s-orry, Mom, S-s-orry!" Mom would wince, but always hug, whispering loving assurances, her own face wet with tears.

Half a century ago, there were limited choices to address this crisis. Special Education classes then were little more than dumping grounds for any and all mentally and physically handicapped kids. 

Group homes for their care did not yet exist where we lived in Eastern Washington. But the situation with my tortured sister could not continue, and eventually medical and social workers consulted advised placing Carolyn in institutional care -- a nearby state-funded dormitory facility where she would be cared for along with 80 others "like her."

Mom and Dad reluctantly agreed. I was 12 when my sister was moved to a multi-story, brick Lakeland Village. Oh, we visited her there often, and holidays she would join us at home -- for a night or two -- but then would come time for her to go back, and still sometimes, not peacefully.

Over the ensuing years, Lakeland Village gradually placed its charges in smaller group homes. Physicians would now prescribe medications to ease the mood swings, social workers arranged regular outings and crafts, exercise, trips to the movies and church services.

The years passed. Mom and Dad would regularly visit Carolyn, keeping track of her clothing, medical, bedding, and growing stuffed animals collection. But then came their own aging, dementia, assisted living and then nursing home care, finally ending with their deaths in 2019.

I could not qualify under Washington state law to myself serve as Carolyn's legal guardian, since I had lived and worked 800 miles away in Utah for several decades; my sister came under the care of professional state-appointed guardians.

I have been able to talk with her on the telephone often and visit her in person on several occasions over the past few years. I saw her health deteriorating, her mobility requiring first an aluminum walker, and then a wheelchair. Her breathing became increasingly labored, and then in the past few months, trips to the hospital and long-term nursing care before a brief return to her own room and belongings at her residential group home.

I have been able to talk with her on the telephone often and visit her in person on several occasions over the past few years. 

Her breathing became increasingly labored, and then in the past few months, trips to the hospital and long-term nursing care before a brief return to her own room and belongings at her residential group home.

Last night, the call came from the director of her home. My "big sister" may not make her 74th birthday in July. 

Again she was rushed to the hospital, where doctors found her unable to safely swallow, her blood oxygen levels in the low 80s. She was put on supplemental oxygen, and a feeding tube inserted to stabilize her.

Once that is done, it was hoped Carolyn could return to the comfort of her group home room, in her own bed, surrounded by those stuffed animals, and what had become her caregiving sisters and family.

"Comfort care," was the term. It was an echo for me, being the same words that had been used to govern the final journeys of our parents, before they passed away in their sleep, just months apart a few years ago.

Despite my lack of legal status in Carolyn's case, her caregivers have been willing to keep me regularly apprised of her status. The immediate future, and how it unfolds for her, and me, her distant "big brother," is known only to the God we both love.

And so, once again, I wait, and I pray. 

I ask for physical healing, knowing that even if it comes for her, it will be a brief reprieve. Rather, I pray, too, for her ultimate healing -- a peaceful, painless release when the time comes -- and a heavenly welcome and embraces from Mom and Dad.

Love, after all, is eternal.

Waiting for God

It’s been a crazy few months.

And I’m not just talking about Trump’s upset victory.

Before Thanksgiving, the sewage system serving our condo unit backed up, resulting in $11,000 damage to our unit. It was supposed to take three weeks; it took more like eight. The work, finally, was completed a week ago.

Then, my 94-year-old father’s condition worsened, his dementia and frailty forcing a move to a 24/7 nursing facility.

It was stressful, emotional time made all the more difficult by timing and distance, that is, it being the depth of winter and 800 miles away.

My son, Rob, and I trekked north in (what we later learned) was a rented minivan with bald back tires on snowcapped, icy roads from Utah to Spokane, Wash.  Heavy snowstorms closed down first one interstate route and then another, forcing us to make the trip — both there and back — on two-lane roads winding through the mountains of western and central Idaho through the Nez Perce Indian Reservation and then the rolling, barely plowed roads of the Palouse.

White-knuckle driving for my son, who was behind the wheel during a total 30 hours round trip, often at speeds no more than 35 mph.

A couple times, sliding semi-trailer rigs had near collisions just ahead of us, and we saw easily a dozen vehicles off the road due to misjudgment of black ice.

We had prayed for protection, though, and we got it.

We also had prayed my Dad’s move would go well and without a hitch. It ultimately did. Preparation beforehand helped a lot, too.


But it’s always painful to see a parent entered the deepening twilight of life.

We remember them when they were younger, sharper; a hero, and occasionally nemesis to a know-it-all teen or 20-something; clueless or profoundly wise.

More than a year ago, it was my mother — in the final stages of Alzheimer’s disease — who had to be transferred to a “memory care” unit, leaving her husband of close to 70 years behind, alone.
On Jan. 11, Dad joined Mom in the same unit, his room next to her’s.

Nursing staff tells me they both seem at peace. Mom recognizes Dad for a few seconds, but usually know him only vaguely.

But it’s enough for them. Mom can no longer talk, but she listens to Dad’s soft, tender words through the day as they hold hands at meals and activity times.

Dad, once recognized as one of the most talented banjo players in the country, spends the in-between times struggling to complete pure, resonant chords on a ukulele. His sight nearly gone, he sees music with arthritic fingers, tentatively exploring the strings and frets.


Back home in Utah, I went through the boxes of file folders, photos, knickknacks, etc., we brought back with us from Dad's old assisted living room. Bittersweet. Tears fell for what was lost, but also for lives well-lived.


Happy photos of a young couple, just starting out in the late 1940s, their lives stretching ahead of them. Pictures of my sister and I as babies, and kids. Our kids.


But perhaps most precious of all were the love letters. Long, handwritten letters from a 20-year-old Montana girl to her 27-year-old soul mate, professing longing and love. Letters back from Dad to her, from various small towns where he was holding evangelistic meetings, dripping tenderness, punctuated with his silly cartoons.

Letters laden with the innocence of their love and dreams, the strength of their Christian faith that would sustain them through so many heartaches, and a few triumphs, in the years ahead.

So many decades later, their lives have been distilled to a handful of heartbeats, the clasping of gnarled, parched hands, and murmurs of love that, somehow, has survived the loss of so many memories.


The decades have wound down now. Months? Weeks? Days? Hours? What remains for them as they rise to sunlight and yawn toward the dusk of their time.


Then they nap or sleep the nights away, waiting for God.

Mother's Day: Of generations fading, generations rising -- and tiny miracles

Mother's Day 2015 was sweet and melancholy, affirming even as it brought the aching of, and blessings of memories.

 Barbara received lovely cards, flowers and heartfelt calls from the kids (and me), and we reached out to our daughter and daughter-in-law with what we hope were the same levels of love. That was the sweet.

But it also was a melancholy day, with some tears. Barb's and my memories of her mom, who also was one of my best friends, are fresh and a little less painful years after her passing.

And there's my mother, in the final stages of Alzheimer's, no longer knowing or remembering me or my sister, or my dad. When I check on her, though, there's this: the nursing home staff says her loving, if now nonsensical attempts at speech are for her two baby dolls.

Sad, but I also smile at this: both her dolls are babies of color. So are her two most recently born grandsons.

Somewhere in her shredded memories, is there an inkling of this next generation? I don't know.

But the nursing home staff says she specifically chose, and constantly holds those two specific dolls out of the assortment of mostly white babies.

I always smile when my daughter sends me the most recent video of newborn Nate and toddler Gabe. This Mother's Day, I was able to smile a bit broader.

In so many ways, I have lost my mother as much as Barbara has lost her's. The mourning is different, but feels very much the same . . . and yet, there was this "miracle of the dolls."

I'll take it.

Life: Is it what happens to us, our how we happen to live?

A friend and longtime journalistic colleague of mine asked the other day why I hadn't blogged recently.

My answer was that life had been too complicated of late, that I had been reticent to write more about the downward spiral of Alzheimer's and dementia with my parents, the disappointments of work, loss of perceived purpose, etc.

In short, I have been waiting for something more positive, uplifting to write about.

The arrival of my second grandson was, without a doubt, the best of a trying beginning to a new year. My daughter and son-in-law send pictures, and we video chat (Skype) frequently, to see little Nate, his big brother Gabe, and our only granddaughter, Lela.

Another: This past week, after six years of hard work, my wife, Barbara, earned her B.S. in Accounting from Western Governors University. Her joy and glow of success has been a treasure, and for her an indescribable mix of elevated self-worth, victory over the odds, and meaning.

Those are the brightest moments these days. Those are the sailboats we choose to crawl aboard -- yes, choosing to sail toward the sun rather than sink deeper into the darkness of choppy seas.

Life goes on, in all its exhilaration, the laughter and tears of a new generation, and unavoidably, the sorrow and ongoing losses of the last generation.

It  dawned on me, then, that if I waited for some dramatic turn in fortune to blog again, I would be doing Life a disservice. And, I would be waiting a very long time.

We humans like to divide what happens to us into "good" or "bad." We are blessed, or cursed; loved or hated; appreciated or dismissed; relevant or discarded, relegated to less-ambitious roles by younger superiors, etc.

If you maintain the usual human linear assumptions -- our finite, fail-safe manner of thinking and experiencing life -- all of that seems true.

But nothing truly is linear. Matter, energy and our souls are alike indestructible. Mountains erode into sand; sunlight is absorbed by plants to feed and, when they flower, amaze us higher life forms; and corporeal bodies are born, age, break down and eventually decompose to their base elements, only to return as the elements of new life.

The "Breath of Life," that profound, ethereal and yet reassuring expression of creation and existence and rebirth into an infinite existence, exposes as woefully inadequate that linear view of Time, or Being, or Purpose.

We are in error if we do not realize that Reality, according to physicists and theologians alike, extends far beyond the meager dimensions in which we live and perceive.

We attempt to grasp at an understanding of the Creative Intelligence, visualizing human-like super beings holding sway over our lives. But in our hearts, we know that "God" is a Presence both horrifying in its difference from us, and in its iinfinite nature, and as wonderful, and awe-inspiring in its limitless embodiment of what we call "Love.”

And when it comes to Love, we perceive even that with only a microscopic, fragmentary understanding.

We see beginning, middle and end, and think we understand the nature of things. He sees all Time, all its permutations, alternate outcomes – and Space, what we perceive and the wilderness of endless stars, planets, life forms beyond -- as One.

Ultimately, we have two choices. 

 

We can, in our human arrogance, close the inquiries of our finite minds to the Infinite, to Love, Creation and Purpose beyond grasping; we can conclude that what WE cannot understand cannot exist.

Or, we can accept, embrace and trust the Creator and creative process that led to what we are -- as a species, as well as individual souls.

When intellect reaches its limits, there is nothing more than to surrender to the limits, and thus errors of our knowledge.

And, always, the proper response to Love is to live in it, allowing it to flow through us to others.

My cousin Rob died young, but learned lessons for the ages

The first time I met my younger cousin, Rob Castor, he rushed up to the table where my aunt had made breakfast for my dad and me . . . and, with a big toddler grin, unleashed a spit-laden raspberry all over my toast.

He ran off giggling, his plastic pants a blur.

Over the ensuing 50-plus years, my contacts with Rob were better. Along with his three younger brothers, they were the closest thing I had to male siblings.

The fun-loving kid grew into a sometimes wild, partying teen and young man. He always had a smile, laughed at everything, seemed to love everyone.

No judgment from Rob, who was all too aware of his own foibles.

Like many on the maternal, Scots-Irish side of my family, he had a weakness for, and lifetime struggle with addictive behavior. It was a gene I, too, have had to fight.

Alcohol. Tobacco. Drugs. Food. Whatever would fill the gnawing hunger inside.

Rob paid a heavy price, his health suffering as he grew older.

His 56th year, this year, would be his last. Just a couple weeks after we had a wonderful, upbeat talk on the phone, he suddenly passed away. 

We had talked about growing up in our strange clan, the good times, some of the bad. He was considering weight loss surgery, something I had gone through a few years back. He was optimistic, motivated.

I encouraged him. He shared his rekindled Christian faith with me.

He never had the surgery. They say a complete renal shutdown did him in.

The last thing I remember, now, is his laughter, and concern for my parents. "I love them so much!" he said. "I'm praying for them."

Rob died young. But he did not leave us before learning, and practicing, a lesson — perhaps The Lesson — many of us never embrace:

Loving and accepting each other, flaws and all, is what it's all about.

I'm proud of that about my cousin. And in that love of life and others, without judging them, he will always be my mentor.

God bless, cuz.

I'll see you again, soon enough.

I'll just listen for that deep belly laugh, step into the Light and give you a bear hug.

Across continents, white, red and black, we are family

Irony seldom disappoints me. Often, it delights me.

I'm just back from a recent trip to see my daughter Brenda, her husband Idal, granddaughter Lela, 6, and our grandson Gabriel, who is closing in on his first year on this planet.

Our grandson's full name seems a perfect segue for this post: Gabriel Idal Mims Tchoundjo.

-- "Gabriel," in Hebrew, translates to "God is my strength," or alternatively "man of God." As an archangel, he appears whenever something big, indeed history-making, is about to occur: Daniel's prophecies of the future, including the End Times; announcing John the Baptist's unexpected coming, and then Mary's coming role as mother of the Messiah; he also is to trumpet in the End of Days, according to St. John's Revelation.

-- "Idal" reflects the given name of our grandson's father. It is a name that appears, in various forms, throughout both African and European cultures, often meaning "noble."

-- "Mims." That was a blessing from my son-in-law and daughter, a way for our family name to live on in the next generational bloodline. The family name goes back to the the Middle Ages, perhaps starting with a folks operating a ferry over the then-significant Mims River in the vicinity of modern-day Wales (Mymms), though DNA and genealogical records show more instances of the name in Ireland, as well as Middlesex, England (Mimms). In America, the name embraced lineages of the Cherokee, too.

-- "Tchoundjo." The family name of my son-in-law, whose origins go back to west-central Africa and the Republic of Cameroon. The history of his people is hundreds if not thousands of years older than the United States, and today they are united by their shared French and Bamileke languages.

West-central Africa generally was the origin point for the slave trade, though most of America's African slaves came from the Ghana-Senegal regions. Still, in the 1700s, some coastal peoples in Cameroon were abducted, by other tribes or white-led raiders, and sold to slavers headed to the Deep South. In other words, it is possible that some of my southern forebearers may have worked their plantations and farms with African labor bought on the auction blocks of Virginia, the Carolinas and Georgia.

Most Mimses fought for the South, but there are about 30 who donned blue uniforms -- a few of them whites from the Northern states, but more than two dozen of them African slaves who had escaped, or in rare instances been freed by their "masters." Recruited by the U.S. Colored Troops Divisions, they shed their blood for freedom under the only surname they had ever known, Mims.

The circle has closed with a union of love and bloodlines that stretches across continents, time and space, in the smiling, laughing form of a child named Gabriel.

One day during our trip, our rainbow family visited Harpers Ferry, where in 1859 abolitionist John Brown and his band tried to seize the armory with the goal of arming a slave rebellion. He failed, his followers either slain or imprisoned, and he was hung. But his act arguably accelerated the ultimate break between North and South, eventually leading to the end of slavery in America -- and the beginning of the long, tortuous path toward racial equality.

Somehow, it seemed very right to share that visit with my son-in-law, especially. A young man I have become so proud of in the short time I have known him. He is a brilliant medical professional, a newly sworn-in 1st Lieutenant in the U.S. Army Reserves, a man of integrity and faith, patience and compassion. All those things, and more -- a loving husband and gentle, yet firm father.

We are Family.

A lesson in grace: Alzheimer's a sorrow for caregivers, a horror for spouses

A lesson in grace.

I am one of those Baby-Boomers trying to oversee the care of my elderly parents. 

 

In my 91-year-old father's case, it is a matter of a still sharp, though unchallenged mind trapped inside a frail, failing body.

The opposite is true of my 86-year-old mother. Her physical health is fairly good; it is her mind, rapidly being destroyed by Alzheimer's disease, that is the biggest challenge.

And, it is a challenge beyond resolution.

My epiphany this week is NOT those realizations, however.

Rather, I have learned that the grief, helplessness and frustration I feel over their not-so-golden years pales when I allow imagination to let me live for a second or two in their minds, their spirits

.

Inside a small room, my father is more than just trapped in a body too weak to move more than a dozen steps at a time. He is trapped 24/7 with the shell of the woman he married 65 years ago, a remarkable woman once vivacious and mentally sharp, but now unable to speak a coherent sentence or remember what she did five minutes before.

That does not, however, stop her from babbling, stringing words together, all day long -- and in her sleep -- that apparently only she knows the meaning of.

And that, I realize, would drive me mad. Quickly.

Finally, it has driven my always stoic, generally positive father into depression.

Dad had endured for the past year and a half as Mom's Alzheimer's ravaged her mind and memories. Last night, it was just too much.

"I'm just tired of opposing," he said when I made one of my bi-weekly calls.

In the code language we have adopted (since Mom has, occasionally, flown into a rage at any perceived criticism overheard) he was telling me he's exhausted by the losing battle to find some emotional equilibrium for Mom and himself.

Then, unable to speak any longer as he choked up, he put down the phone. Mom picked it up.

"Er, Mom, how are you?"

"Mom?" Confused.

"Yes. You are my Mom. I'm your son, Bob Jr."

"What? That's funny. Who?"

And so it goes.

She hung up.

At least, in forgetting her children, she doesn't have the pain of missing them. So, there's that.

But I mourn her. So much of her has died, even as what little remains continues to fade within a body that has outlived its owner.

You do what you can. 

 

In this case, it was calling the medical provider for my father and asking he be evaluated for anti-depressants.

Then, I prayed.

"End of Life" decisions? Ultimately, we decide nothing. Thank God.

I learned Wednesday that by this time next week, if all continues to go as hoped, my 91-year-old father will be able to return to his assisted living facility, rejoining my mother.

I learned this in a late-afternoon conference call with his medical staff at a skilled nursing facility, where he has been for the past two weeks after nearly a month in and out of the ER with internal bleeding issues.

At one point during this sojourn, I had a call from his doctor asking about how far we wanted him to go with care, should he stop breathing, or have heart failure. We spoke about DNRs ("do not resuscitate") orders, should Dad's Living Will kick in at some point.

We came to a general threshold for letting go: severe brain damage, to the point of losing sentience. We hung up, and I have spent the next few weeks wondering “when?” . . . .

In those tender, plaintive and grittiest of conversations with Dad of late, he wondered himself about longevity vs. quality of life. And, considering my mother's progressive Alzheimer's, he would occasionally confess, in his rasping voice, that living with his frail health and failing eyesight (macular degeneration), and watching Mom drift away, neuron-by-neuron, was not the promise of the so-called "golden years."

Our miraculous medical technology has been wonderful for prolonging life, when intellect and wonder are still intact. But what happens when life implodes into a world of pain, constant hospitalization and increasing helplessness?

Worse, perhaps, what happens when our bodies become earthly tents, sewn shut by artificial longevity as the mind dies inside?

Our ability to extend physical life beyond the spiritual, or for the skeptics among us mortal "sentience," poses moral and ethical paradoxes seemingly unique to our generation. Life is more than machinery, more that mere heart beats and another breath, we are learning.

I am convinced that no thing, and no one is ever "lost." The former is a case of science, in that neither matter nor energy ends; the latter a conviction of faith, perhaps extrapolated into the metaphysical realm from the physical.

My mother seldom recognizes me anymore, has lost so many memories . . . here. But I firmly believe that someday, when the machinery finally fails, what is left of her here will be reunited with what has already passed on, There.

So, all these musings and internal, and ultimately external, debates about What is Life, and End of Life decisions, seem to pale in those undiscovered countries of being.

Ultimately, we “decide” nothing. We may delay the inevitable, but our clocks began ticking toward the great Transition from the moment of conception. And, at the beginning -- and the end -- it indeed comes down to a matter of the heart.

Physically, and metaphorically.

As I heard the medical staff conclude that Dad could be returned to assisted living, and my mother, within a week, something else drowned out the words.

It was my father, in the background, weeping, stuttering out how the news was "wonderful," how he missed my mother, was worried that she would finally forget him, too, and that he always saw "her sweet face" in his mind.

So, “When?”

Not yet, Dad. Not yet.

I'm a grandpa . . . for the first, and the third time.

So, I am a grandpa. For the first time . . . and for the third time.

Let me explain.

I already had two grandkids. Joshua, now in his 20s, and Lela, 6, are what I call grandchildren born in my heart. They came to us through marriage from our daughter-in-law and son-in-law, respectively.

But there are ties and bonds of love that will last or eternity, nonetheless. My wife feels the same way -- and that is how we will treat them, now and, well, forever.

This past Friday, though, my daughter gave birth to Gabriel Idal Mims-Tchoundjo. Gabe came about six weeks early, so he will be in the Neo-natal ICU for several more weeks. But the prognosis is excellent: he is active, alert, breathing on his own, gaining weight (born at 3 pounds, 3 ounces) and strength daily.

On Saturday, my wife Barbara and I were able to "Skype" with the proud mom and dad from their hospital in Baltimore to the proud grandparents (us) in Salt Lake City.

It was about a half an hour of watching Gabe thrash around, dine on pumped breast milk from Brenda (thank goodness, the pumping was not part of this "live" broadcast!), and respond to his mother's and father's caresses.

Gave me a totally new feeling of . . . completeness. It's a father-daughter thing, I suspect. And it wasn't just about the survival imperative, i.e. DNA being passed on to forge ahead in Time.

 

 It was, more I think, seeing her happy with her own family, and watching how tender and attentive my son-in-law was to her and his son.

 

 Think of the last time we smiled seeing a mother, father and infant huddled together in a mall, airport, train, bus, etc. There was just something "right" about it all . . . then multiply that feeling 100 times.

Sort of like that. 

Grandfetus revealed (and how). It's a he, and his name shall be Gabriel

Since my daughter, Brenda, and her husband Idal told us she was expecting, I've been calling my future grandfetus "Critter."
This was tolerated, barely, by the future parents.
Now, halfway through the pregnancy, a sonogram snapshot confirms that "Critter" is a male.
Captured for all to see are the appropriate . . . accoutrements to the male gender. Let's just say, without bragging, that the evidence is impossible to miss.
Even if the viewer suffered poor eyesight. Just sayin.
Moving along . . . 
So, the child's name shall be . . .  Gabriel Mims-Tchinang Tchoundjo.
I suspect, as the years come along, I will be calling him "Gabe."
After all, it took me nearly a year to get the pronunciation of my son-in-law's name (he's originally from Cameroon) correct.
It is nice they included our family name in there, though.
And, who knows . . . I might even have a special nickname for little Gabe down the road.
Hmm.
Maybe . . . Critter!

P.S. Not sharing the aforementioned sonogram, at the parents' request.

P.S.S. I'd have to include a viewer's warning, after all.

Of Alzheimer's and "tough love"

Unpleasant duties ahead this week. Have I mentioned how much I hate Alzheimer's? It not only robs your loved ones of their memories of you . . . but taints and buries your fondest memories of them, with the pain and rejection of the confused, occasionally angry, bitter people they have become.

Tough love is supposed to be what you, as parents, give your children -- those times when you bear the pain of their anger and seeming loss of their love BECAUSE you love them that much. If you would die for them, you should be willing to bear that, too.

I have known that; I have had to practice that.

I never, ever thought that role would be reversed, where I, the child, would have to experience the same pain doing what is right, but painful, for my own parents.

This past week, anticipating -- dreading, really -- the next stage of care needed for my mother, I have deliberately tried to remember the way she was, not that long ago. The laughter, the twinkle in her eyes, the feisty courage of a 5-2 Scots-Irish heroine who taught me how to fight, ride a bike, throw a ball, the conditionless love and support, the hours at night spent helping me pass math, ace spelling tests . . . the times when I was sick, her cool hand on my brow, the soft prayers.

Now, that woman is . . . gone. What is left has slipped into the cloudiness, confusion, paranoia and anger of the disease. So, my heart goes out to all of my generation dealing with parents suffering from this horrible disease.

My mother is gone. What is left is a shell, and the love we give her is unreturned. Not out of spite, but out of inability to understand it. I know that.

But I cannot just let this go.

I know, the rest of what is left of my mother will some day, and if there is mercy, soon, join what has already passed on. But I will find a way to honor her -- and my father, also in his final days. There will be some way I can fight Alzheimer's, some way to comfort others suffering from, and with this disease.

I will find it.

Alzheimer's and Mom: Of the living and the breathing dead

I made one of my two weekly calls to my folks today and realized, belatedly, that my last meaningful, even understandable conversation with my mother was sometime in the past.

Truth be told, it probably was a couple years ago.

My folks are in Assisted Living in Spokane, Washington. Mom has Alzheimer's disease, a form that has rapidly deteriorated her ability to reason, understand or even speak without referring to every noun as "that place" or "that thing." 

 

Half the time, she has to think hard to remember who I am, her only son. The other half of the time, she thinks I am her grandson, or her brother, John.

She has forgotten how to use the phone, and as her vocabulary has evaporated along with her ability to think, the conversations have disappeared.

Two years ago, Mom could talk your ear off. If I called home, I knew I needed to have emptied the bladder beforehand, because 45 minutes was a short conversation.

She was articulate, interested, sharp. This is the woman who got me through math in high school, for crying out loud.

Now, she doesn't know the difference between $100 bills and a quarter, she has forgotten how to use a washer, or the TV remote; she gets lost in the hallways of their facility, and floods their unit regularly when she tries to wash clothes in the sink . . . and leaves the water running.

All that is left for her are emotions, and a resolute stubbornness. That stubbornness got her through a childhood that saw her going to work at 15 to help support a Montana preacher's family of 14. . . and raise her own family during times of hardship and too little joy.

And now with Mom 85, my 62-year-old developmentally disabled big sister -- who has the mental faculties of a 4-5 year old and lives in a group home -- has more on the ball.

I hate Alzheimer's. It has robbed me of my mother, while leaving behind a poor, fading reflection of her.

In all the ways that matter, my mother -- the vibrant, optimistic, natively intelligent person she was -- has not-so-gradually passed away. All that is left in a breathing, emaciated shell of a confused woman, a shadow, a wraith that bears her name.

All that is left is to love her, on an increasingly primal level. Even her ability to return love is fading, as her world continues to implode, retreating back to . . . what? A psychic womb? A spiritual ovum?

Where has she gone? How do I find her?

No answers. Just faith that what is Katherine Powell Mims is being safeguarded in the arms of the Eternal, to live again.

Challenges, yes. Still, the best Thanksgiving, ever.

A tough year. And, the best Thanksgiving, ever.
Seems unlikely, looking at 2012 in cynical perspective. The near-miss with what would've been a massive, instantly deadly cardiac event. Open-heart surgery to replace the failed aortic valve, and a long (still ongoing) recovery.
Having to face the darkness and drawn-out grief of Alzheimer's, and the need to move my folks into assisted living.
The hard decision, made inevitable by Washington residency requirements for guardianship, to see my big (older)-little (mentally disabled by cerebral palsy) sister become a ward of the state.
Callie, my best furry friend, claimed by cancer long before her time.
But, perspective is the key. Always has been.
And when I look at the blessings, instead of the challenges, this has been a great year:
I'm alive, and getting stronger and healthier all the time, the Grim Reaper fended off indefinitely.
My folks, having adjusted to their move, now seem happy and are safe and provided for, even as their bodies and minds leave this existence and are resurrected in the broader, eternal realm of Love that comes next.
My sister is in a group home where the staff cares, and is happy with her life and sheltered workshop duties.
Callie -- I was able to say goodbye to my sweet-natured border collie, holding her head in my hands and speaking words of love as the light faded from her trusting eyes.
And then there's my daughter, Brenda, finding love, a new husband and a little daughter . . . giving Barb and me a wonderful son-in-law, and a sweet granddaughter to bless our family . . . already blessed by a wonderful daughter-in-law and grandson.
So, yes. This is the best Thanksgiving, ever.